9 Months old - June 13th, 2014

I can't believe Owen is 9 months old already. He is weighing in at 14lbs 10oz. Still gaining slowly and refusing to eat at times. The doctor said that sometimes that just happens when they are around 9 or 10 months old and you can't really make them eat anymore. He is enjoying his solid foods pretty good, when he wants too. :)

The immunologist did blood work and said that his immune system reacted like it was supposed to react to the 6  month shots!!!

Cardiologist did an EKG and it looked good. Owen is going to do an echo in 10 days and if that looks good then he will be cleared from the cardiologist!!

ON the 24th we are going to a doctor about his head. It is really flat in the back and it is probably one of two things. 1. Craniosynostosis - which is where the skull fuses together early and brain doesn't have room to grow. This would involve surgery and then a helmet.
2. plagiocephaly - just from laying on his back too much and from when his neck was really stiff and favored one side. Repairing this would just mean a helmet.

The CMN telethon a couple weeks ago was a success. If you weren't able to see Owens story you can see it here: 

http://www.umchealthsystem.com/index.php/childrens-miracle-network/miracle-children

Owen was rolling over a couple weeks ago from belly to back but has since decided that's too much work. His nick name is "lazy bones"... He has learned that we will assist him with everything so there is no need for him to have to do much including rolling over, picking up toys (please place them directly in his hands), putting his paci in his mouth, holding his bottle, the list goes on. We are working on it, but he has us wrapped around his cute little fingers! He is started to sit up much better with just a boppy around him!!

Just so you don't think he's always happy:)

Have you seen my starfish?

On live tv at the CMN Telethon

Pool party!

Pretty cute!

CMN Telethon - May 28, 2014

Owen is scheduled to do a live interview for the telethon on Saturday May 31st between 2:30 and 3pm ok KCBD channel 11. They also have a previously recorded interview that they will play sometime during the weekend as well. 

Owen has been struggling eat lately, we are not sure why, he has only gained 5 oz in two weeks compared to his normal 15 oz that he usually gains. 

Thursday we go to the immunatologist for some blood work to check his immunity levels. 

Monday we go back to see his pediatrition for a check up. Hopefully he will have a solution as to why Owen is refusing to eat at times.

June 10th we head to the cardiologist to make sure everything is still good since leaving the NICU.

This boy is growin fast! 

Serious photoshoot, no smiling 

Hanging with his friends

Filling out this spread sheet

Feeding himself! Nom nom

Smiles

Helping mom in the kitchen 

Working on sitting!

8 months old - May 9, 2014

Owen is going to be 8 Months old tomorrow!! He is still gaining weight at a good rate, he really wants to catch up to his growth chart. He is 13lbs 7oz! He is almost on the growth chart for his adjusted age (4.5 months). We started solid foods over a week ago and he has really enjoyed it! It took his tummy a little time to get used to it but is handling it much better now. He has also learned to appreciate his glasses and we can tell that he can see a lot better.

Two weeks ago at his high risk appointment the doctor only had one concern, which was the back of his head is pretty flat. We are hoping keeping him upright as much as possibly can correct this, if not he will need to go see an ENT doctor about correcting it with a helmet.

We don't have many doctor appointments this month!! We are participating in the Children's Miracle network telethon on May 31st on KCBD. We interviews and photoshoots for that this week. 

Easter Boy

Owens First Easter basket

Studying on his leapfrog

Mmmm sweet potatoes

Getting better at Tummy Time

Cracking up!

Optometry - April, 17th, 2014

Hey, been awhile, sorry. Not much has been happening. Owen is growing, eating, sleeping and smiling... And crying.  :).  He is 11lbs 14oz. He has more then doubled his weight since he has been home. He has started to sleep through the night, still on oxygen at night. We go back to his pediatriction in 2 weeks and next week we go back to high risk doctor, who was the neonatologist that took care of him while he was in the hospital. 

This morning we went to see the pediatric opthamologist. He tested his eyes and also looked in them to see how they reacted with a light through different lenses. He determined that Owen is very near sighted (cannot see well far away), For this he will need glasses. He also said he had stigmatism's which means that his eyes are shaped like a football instead of a basketball. We knew after his eye surgery that he had lost some perifrial vision, now he is going to have more issues to deal with, but we will be able to mange it.

Please pray for his patience transitioning to glasses and for them to help him see better.

Super baby!

Super tired..

The fight for the pillow continues

Birthday boy!!

2 months...7 months.. 

Just sitting up!

Do these glasses make me look smart?

Growing Boy - April 1, 2014

I can't believe it is April already. We had another visit to the pediatrician yesterday and everything is going so well that we don't have an appointment for 4 weeks!! we will go in weekly for weight checks but that is it. The doctor wants to continue Owen with the rice cereal twice a day and oxygen at night. we don't have to use the monitors in the daytime unless he is sleeping. it is so nice to be able to pick him up and carry him to another room with out worrying about chords and monitors!  He is doing good with the cereal....when he wants to, sometimes he is just not that interested in it, that is his personality though.

we starting putting him in his Jumper and Bumbo. He will only sit in it for a couple of minutes, but is getting stronger and stronger each time.

This month we see the Pediatric Ophthalmologist and High Risk Doctor (NICU Doctor)

Great grandmothers - March 19, 2014

Monday Owen went to see his doctor again. Check up was good! He is 10lbs!! We are going to keep him on oxygen at night since he is having periodic breathing while napping in the day, which makes his oxygen saturations go down. Hopefully this is something he will grow out of soon. 

Owen got to try rice cereal Monday for the first time. He didn't spit it out, so I would call that a success!! We will continue to give it to him twice a day to get him used to eating with a spoon. 

We will be heading back to the doctors Monday for another follow up.

Caught him smiling

4 Generations with Granny Patty

Owen snuggling up

Mamaw getting to snuggle with Owen 

Great Grandma Charlebois never got to meet Owen, but did get to see many photos of him before she passed in February.

6 months old!! - March 10, 2014

Wow, can't believe Owen is already 6 months old!! I would love to say that time has flown, well it's been the longest, most emotional 6 months of our lives. We are so blessed to be where we are at right now and to have the strength, support and prayers to get us here as well as the strongest little man I have ever met.

This morning we went to the doctors and Owen is 9lbs 12oz!!! We are trying to take his oxygen off during the day and keep it on at night. Today he did pretty well with it except his oxygen saturations would drop when he napped. Hopefully he willl just need a couple of days to figure it out and get stronger. I think that it wore him out today having no assistance of oxygen. 

Please pray that he will be successful getting off of oxygen. 

This is what happens when you poop everywhere

Roar

Birthday boy

Lazy Tummy time