They attempted to extubate him, but he didn't do too well. They had to intubate him and put him back on the ventilator. This really tired the little guy out. They should be able to try again next week. His lung x rays still look good.
After that, he had his first eye appointment. This was also very stressful on him. His doesn't open his eyes most of the time and even if he wanted to, he would have a hard time because of the edema. They forced his eyes open and held them that way to do the tests. The good news out of this was that his eyes are doing good considering he has been on lots of oxygen.
He is continuing to pee good. He even lost a little weight overnight. Some of the kidney numbers are still too high, but it seems to be working a little. They are going up to 6ml per hour on his breast milk.
His liver is still having a hard time processing things.
They are giving him medicine to help his gallbladder.
They are discontinuing his antibiotics after today. The cultures all turned out normal.
They got his vitamin D levels back from the lab in California. He only has half of what he needs. They are continuing with the vitamin D supplement.
Praying for:
- Kidneys to function better
- Lungs to function better
- Liver to function better
- Bones to grow stronger
- Adrenal glands to work correctly
- No long term side effects from steroids
- Recover from the long day
- Infections to stay away
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Thank you for continuing to provide updates for all of us. I am thinking of you and praying for you all while Owen continues to improve day by day. One day at a time. Lots of good signs. Hang in there Mom and Dad. Sandy C.
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