Cloudy Lungs - November 7th, 2013

We thought that they might try to extubate Owen again today, but his X-rays this morning showed that his lungs pretty cloudy, the Doctor thinks that it is just extra fluid and he is trying to dehydrate Owen to clear that up. He is giving him some extra diuretic and has stopped giving him the Plasma. This should help clear out the lungs. We will get another X-ray tomorrow morning. Today Owen's saturation levels were not too consistent, probably because of his lungs.

CPAP trial on the ventilator we well again today, they are doing them for 6 hours on and then giving him a break for 6 hours.

So far Eric and Amy's blood work for abnormal clotting factors has come back with no concern, there are a couple more that will take a little longer.

Praying for:

• Bones to grow stronger
• Lungs to function better
• Infection to stay away
• Heart problems to heal
• No long term effects from the steroids
• Stopping the Bronchospasms
• Getting stronger

My First bubble Bath!

It is kind of making me sleepy

I think I like it...

What are you looking at, I don't have Rabies, my dad thinks he is funny

Finally bed time!

No infections - November 6, 2013

Owen was a little unstable overnight, but he was lot better today.  The infections are cleared up for the time being.

He is still having some blood in his lung secretions.  No final results from all the blood tests yesterday.  He is a little low on one clotting factor so he is getting some plasma.

His lungs looked better today.  He did have a couple of bronchospasms.

His liver levels were a lot better today so they stopped the photo therapy lights for now.

Urine and stool output is still good.

He got put on another ventilator CPAP trial today.  He did good so another extubation attempt may come sooner than later.


Praying for:

Liver to function better

Bones to grow stronger

Lungs to function better

Infections to stay away

Eyes to work correctly

Heart problems to heal

No long term effects from the steroids

Stop having bronchospasms

A good picture of his new open bed with radiant heat

The rabies picture got a lot of interest from people, so here is further evidence of it.

Family blood tests - November 5, 2013

Last night they thought Owen might be running a fever, but it stabilized today.  They ran urine and blood tests last night just to be sure.  He is a lot calmer today.  We don't know if its because he is sick or  tired from being so crazy the last couple of days.

His lungs are ok today.  They are still suctioning out a lot of secretions from his lungs and there is still blood coming out.  A blood specialist is going to look at Owen's clotting factors.  We both went to get blood drawn, also.  They are checking for some minor genetic clotting factor defects that could make him clot too much.

His liver function is still slightly improving.

Owen had his last dose of steroids last night.  It is best to try to extubate while he is on steroids or within three days of discontinuation.  We have to get the infections under control and see what is causing the excess blood.

They increased his extra calories that are added to the breast milk again today.

The focus is to let Owen rest and figure out the infection and blood situation.

Praying for:

Liver to function better

Bones to grow stronger

Lungs to function better

Infections to stay away

Eyes to work correctly

Heart problems to heal

No long term effects from the steroids

Stop having bronchospasms

Eric swaddling yesterday

What mess?

Car seat - November 4, 2013

Owen got to sit in a little car seat today.  He stayed there for about an hour before he just couldn't stand it anymore.

His lungs looked cloudier today.  They were suctioning stuff out of his lungs all day.  There was still some blood in there.  He does have an infection which is contributing to this.  He is on the correct antibiotic to help get rid of it now.

Eric tried to swaddle Owen today.  Just like with the carseat, it took awhile for him to get settled down.

Owen also got another eye exam today.  Things are ok so far.  The doctor will see him in another week.

Owen was real aggravated today.  Anytime he was moved, his heart rate and oxygen saturation would drop way down and they would have to bag him back up.  Not a very good day.

Liver is still trying to recover.


Praying for:

Liver to function better

Bones to grow stronger

Lungs to function better

Infections to stay away

Eyes to work correctly

Heart problems to heal

No long term effects from the steroids

Stop having bronchospasms

Real men wear pink

Eric swaddling Owen

Family photo

Tiny feet - November 3, 2103

Owen rested again today.  He didn't seem to want to do much work on the ventilator either.

He is finally turning a little bit pink in places.  This is a good sign for his liver problems.

His lungs look ok.  Their is still an infection in there and it is now getting treated with the best antibiotic for it.  He is still coughing up a little blood.

The official ECHO report was in.  His heart looks good.

He got a blood transfusion today.

Owen got his milk fortified (calcium,zinc,etc.) a little bit yesterday.  Breast milk does not have as much of these things that premature babies need.  Today they upped his feeds to 44ml every 3 hours.

Owen lost weight last night, too.


Praying for:

Kidneys to function better

Liver to function better

Adrenal glands to function better

Bones to grow stronger

Lungs to function better

Infections to stay away

Eyes to work correctly

Heart problems to heal

No long term effects from the steroids

Tiny feet

Recovery - November 2, 2013

Owen rested well overnight.  He continued to rest and sleep most of the day today.  He finally started waiving his arms and getting cranky late this afternoon.

His liver made slight improvement today.

His urine and stool output were very good yesterday and overnight.  He is down to 5lbs. 12oz. now.

They did another ECHO on him today.  They are just checking to see if something is going on with his heart that would prevent him from being extubated.  Preliminary results were great except he seemed a little on the dehydrated side.

We got the stomach area ultrasound results from the other day.  Organs looked good or getting better.

He does have an infection and his throat was very red when they intubated again last night.  He is coughing up a little blood.  These things may have affected his attempt yesterday.



Praying for:

Kidneys to function better

Liver to function better

Adrenal glands to function better

Bones to grow stronger

Lungs to function better

Infections to stay away

Eyes to work correctly

Heart problems to heal

sleepy baby

might want to be a plumber someday

Failed extubation - November 1, 2013

Not much to say today.  We didn't have much time to write before going back up to the hospital.

He was extubated at 10 this morning and was re intubated at 6:45 this afternoon.  He did real good (on cpap) most of the day.  He went into a bad bronchospasm towards the end when he was tired and aggravated.  He continued to do this and they had to re intubate him.  He is resting and doing good now.

Not much else happened today.  Maybe they will try again in a couple of days.


Praying for:

Kidneys to function better

Liver to function better

Adrenal glands to function better

Bones to grow stronger

Lungs to function better

Infections to stay away

Eyes to work correctly

Heart problems to heal

cpap

cpap