Saturday, February 21, 2015

Neurosurgeons - February 21, 2015

We have had a busy couple of months of doctor appointments, therapies and follow ups. Owen is doing great, continuing to develop at a consistent rate. He is pushing his walker and starting to balance on his own. He is loving the freedom of getting around on his own. He loves to be outside and hates it when it is time to go in. We have been lucky with some beautiful days here lately. He is starting to eat better, drink out of a straw and feed the dog plenty of food that he didn't want (PJ loves him for that reason only).

We had his MRI to make sure that there is no pressure on his brain. it continues to look ok, but the neurosurgeon is concerned about the shape of his skull and the space that his brain has to grow into. He is concerned for his future progress and development and wants to do cranial distractors to create room for his brain to grow. We were in shock since he is constantly showing progress. We decided to get a second opinion with a more experienced cranial surgeon in Dallas. He sent us to get a second CT scan with the thought that Owens sutures could have fused since July. This was not the case and he does not think that surgery is the answer right now since the sutures are open and Owen is not showing any other signs of pressure on the brain. This is such a tough decision for us since we have 2 surgeons telling us very conflicting diagnoses and treatments. One surgeon believes that some suture can stop functioning even though they are open and the other does not believe is that concept. We are heavily relying on our great pediatrician to help walk us through this decision. Right now our plan is to work with the doctor in Dallas who wants to closely monitor Owens skull growth or get a third opinion. Please pray that we are making the right decision for Owen and his future and that the doctors have Owens best interest in mind.





Owen and his BFF Aiden love hanging out, since they are both quarentined until flu season is over. These boys have over come to much, and continue to amaze us!

Loves walking his Brother!!


Loves being outside!!


Owen loves his bubble bathes!!! 


Silly boy

Hamburgers are almost ready!!